Your First Steps on the LBD Caregiving Journey

What you need most right now—clarity, direction, & practical tools

Finding yourself here means you're facing one of life's most challenging roles: caring for someone with Lewy Body Dementia. Whether you're just starting or you've been on this path for a while and feeling overwhelmed, you're in the right place.

I've carefully selected these four resources to help you establish a foundation for the journey ahead. These are the articles I wish someone had shared with me when I started my journey.

Featured

Understanding Lewy Body Dementia

Before you can navigate this journey effectively, you need to understand what makes LBD different from other forms of dementia. This isn't just about symptoms—it's about recognizing the unique patterns and challenges that come with Lewy Body Dementia.

In this article, I break down the complex medical information into clear, practical knowledge you can use right away.

After the LBD Diagnosis

That feeling of helplessness after an LBD diagnosis is overwhelming. But there are concrete actions you can take right now to regain some sense of control and direction.

This guide walks you through five essential steps that helped me move from panic to purpose. These steps will help you establish the foundation you need for the journey ahead.

Caregiver Burnout

Preventing caregiver burnout might be the most important article on the entire site. The reality is that you cannot provide good care if you're running on empty yourself.

This isn't about luxury self-care—it's about sustainability for the long journey ahead.

The LBD Caregiver’s Medical Notebook

One of the biggest challenges of LBD caregiving is keeping track of changing symptoms, medications, appointments, and questions for healthcare providers. Creating a system early will save you countless hours of frustration.

I've developed a practical approach to organizing medical information based on years of trial and error. This resource will help you become a more effective advocate for your loved one and a more informed partner to their healthcare team.

The Caregiver’s Lifeline your medical command post.

What if you had all of your loved one's medical information at your fingertips? No more frantic searching or forgotten details.

The Caregiver's Lifeline organizes everything in one place—patient details, care team contacts, specialists, and medication tracking. Your first step toward organized caregiving awaits

Your First Steps on the LBD Caregiving Journey

What you need most right now—clarity, direction, & practical tools

The Caregiver’s Lifeline your medical command post.

Caregiving made easier