Resources for Cargivers
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REM Sleep Behavior Disorder in Lewy Body Dementia
Have you ever been startled awake by your loved one acting out their dreams—punching, kicking, or even falling out of bed? These frightening episodes aren't just disrupting your sleep; they're giving you important information about their Lewy Body Dementia journey.
In our latest article, I share what I've learned about REM Sleep Behavior Disorder (RBD) from both personal experience and expert sources. You'll discover why this sleep disturbance is a core feature of LBD, affecting up to 89% of those diagnosed, though RBD can also signal other neurological conditions.
Making the Transition to a Dementia Care Facility
Moving a loved one with Lewy Body Dementia to a care facility is perhaps the most emotionally challenging decision caregivers face. Learn strategies to minimize "transfer trauma," maintain important connections after the move, and address family dynamics during this sensitive time.
How to Evaluate Dementia Care Facilities That Truly Care
Learn the "7 C's of Quality Dementia Care" framework to help you evaluate what matters when evaluating facilities.
The Complete Guide to Dementia Care Options and Costs
This is the first of a 3-part series that provides an in-depth view of the options available in dementia care facilities and costs here in the US.
A Dementia Caregiver’s Guide to Healthcare Funding
This comprehensive guide explains what Medicare will and won't cover for dementia care in 2025, plus the alternatives that can help you fill the gaps.
Seeing the Person, Not the Disease: Inside Teepa Snow's Positive Approach to Care
This review examines Teepa Snow's revolutionary GEMS® State Model that emphasizes retained abilities rather than deficits for those with dementia.
Understanding and Managing Hallucinations in Lewy Body Dementia
This comprehensive guide explains the causes hallucinations in dementia patients, how to identify common triggers, and practical strategies to manage them effectively.
Transform Your Caregiving Journey with Peer Mentoring
Recent research shows peer support is revolutionizing LBD caregiving. Learn how family caregivers are sharing their expertise through structured mentoring, helping others master the unique challenges of LBD care.
How to Build a Strong Support Team While Caring for Someone with LBD
Building a support system while caring for someone with LBD doesn't happen overnight. You’ll find practical steps for identifying potential helpers, how to ask for specific support, and create systems that actually work.
Understanding Lewy Body Dementia
Before you can navigate this journey effectively, you need to understand what makes LBD different from other forms of dementia. This isn't just about symptoms—it's about recognizing the unique patterns and challenges that come with Lewy Body Dementia.
In this article, I break down the complex medical information into clear, practical knowledge you can use right away.
After the LBD Diagnosis
That feeling of helplessness after an LBD diagnosis is overwhelming. But there are concrete actions you can take right now to regain some sense of control and direction.
This guide walks you through five essential steps that helped me move from panic to purpose. These steps will help you establish the foundation you need for the journey ahead.
The Ultimate Guide to Taking Control of Your Family Finances
Taking over family finances is about protecting your shared future when living with LBD. This guide walks you through organizing finances and handling the transition with dignity.
How is Lewy Body Dementia (LBD) Diagnosed?
Learn about the LBD diagnostic process, what tests doctors use, and how physicians evaluate the five key areas of LBD symptoms for diagnosis. A guide for families seeking to understand LBD better.
Caregiver Burnout
Preventing caregiver burnout might be the most important article on the entire site. The reality is that you cannot provide good care if you're running on empty yourself.
This isn't about luxury self-care—it's about sustainability for the long journey ahead.
The LBD Caregiver’s Medical Notebook
One of the biggest challenges of LBD caregiving is keeping track of changing symptoms, medications, appointments, and questions for healthcare providers. Creating a system early will save you countless hours of frustration.
I've developed a practical approach to organizing medical information based on years of trial and error. This resource will help you become a more effective advocate for your loved one and a more informed partner to their healthcare team.