Resources for Cargivers

Stop juggling medical details in your head. Get the Caregiver's Lifeline: your complete healthcare command center.

Susan Hand Susan Hand

REM Sleep Behavior Disorder in Lewy Body Dementia

Have you ever been startled awake by your loved one acting out their dreams—punching, kicking, or even falling out of bed? These frightening episodes aren't just disrupting your sleep; they're giving you important information about their Lewy Body Dementia journey.

In our latest article, I share what I've learned about REM Sleep Behavior Disorder (RBD) from both personal experience and expert sources. You'll discover why this sleep disturbance is a core feature of LBD, affecting up to 89% of those diagnosed, though RBD can also signal other neurological conditions.

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About LBD Susan Hand About LBD Susan Hand

Understanding Lewy Body Dementia

Before you can navigate this journey effectively, you need to understand what makes LBD different from other forms of dementia. This isn't just about symptoms—it's about recognizing the unique patterns and challenges that come with Lewy Body Dementia.

In this article, I break down the complex medical information into clear, practical knowledge you can use right away.

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Caregiver Strategies Susan Hand Caregiver Strategies Susan Hand

After the LBD Diagnosis

That feeling of helplessness after an LBD diagnosis is overwhelming. But there are concrete actions you can take right now to regain some sense of control and direction.

This guide walks you through five essential steps that helped me move from panic to purpose. These steps will help you establish the foundation you need for the journey ahead.

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Self Care Susan Hand Self Care Susan Hand

Caregiver Burnout

Preventing caregiver burnout might be the most important article on the entire site. The reality is that you cannot provide good care if you're running on empty yourself.

This isn't about luxury self-care—it's about sustainability for the long journey ahead.

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Caregiver Strategies Susan Hand Caregiver Strategies Susan Hand

The LBD Caregiver’s Medical Notebook

One of the biggest challenges of LBD caregiving is keeping track of changing symptoms, medications, appointments, and questions for healthcare providers. Creating a system early will save you countless hours of frustration.

I've developed a practical approach to organizing medical information based on years of trial and error. This resource will help you become a more effective advocate for your loved one and a more informed partner to their healthcare team.

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